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February 23, 2012 » Support Rare Disease Day and Share Your Story!

As you may be aware, Rare Disease Day is a global acknowledgement of rare diseases that focuses on the importance of collaboration and mutual support. Rare Disease Day is February 29, and is jointly coordinated by NORD and EURORDIS, with support from hundreds of like-minded organizations and governmental agencies.

There are so many stories, so many people who are passionate about impacting the lives of patients with a rare disease. We thought, what better time to share those stories and our support for those patients than on Rare Disease Day? And we invite you to participate with us.

To support Rare Disease Day, we have created a dedicated YouTube channel where you can tell the world why you do what you do. We are reaching out to everyone we know, and we’d like your story to be part of it. Our goal is to have as many videos as possible posted by Rare Disease Day on February 29.

So please grab your iPhone or video camera and join us. Just answer this simple question: Why do you do what you do to help patients with rare diseases?

Thank you for your participation.


P.S. Along with your Rare Disease Day video, please sign and submit this release form. (Our lawyers tell us we need them to be able to post the video on YouTube.) Click here to view all the videos.


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